Region 2

21 Strong (Fairfield County)

21 Strong is a group of families located mainly in Fairfield County, Connecticut, who came together because our lives have been enriched by Down syndrome. We prove that while Down syndrome might unite us, it does not define our families or our children. That extra copy of the 21st chromosome has actually given us some unexpected gifts, strength, and insight that we would like to share. We are here to celebrate, support, and inform. We invite you to join us in our outreach efforts. For more information, contact Tricia Bresnahan at 21strong2010@gmail.com, visit the group’s Facebook page or their website at http://www.21strong.org/.

Autism Parent’s Club (Wilton – Region 2)

Parents with children on the Autism Spectrum in Fairfield County, CT. Join us for a great evening out and meet other parents with children on the Autism Spectrum (Autism, PDD-NOS, Aspergers, Atypical Autism).  Parents are encouraged to share stories, learn about area resources and events, discover different interventions and learn to advocate for their child from from other experienced parents. The group meets fat 7:30 p.m. on the last Tuesday of the month at John’s Best Restaurant located at 1 Danbury Road in Wilton, Connnecticut. For more information, contact Patti Sylvia at 203-761-0248, or email pattisylvia@aol.com.

Autism Services and Resources Connecticut (ASRC) Support Groups (Statewide)

Autism Services and Resources Connecticut (ASRC) facilitates support groups for parents of children on the autism spectrum and families members throughout the state.  For more information, visit www.autismconnecticut.org/find-local-support-group, email info@autismconnecticut.org or call 203-265-7717.

The Center for Growth and Development Parent Support Group (Wilton – Region 2)

The Center for Growth and Development is starting a new parent support group on Wednesday, July 2, 2014.  Meetings will be held on Wednesday mornings at 10 a.m. at the Center located at 84 Danbury Road in Wilton, Connecticut.  Lorraine Morley, L.M.S.W., Family Coordinator at the Center, will facilitate the group.  The group is designed to offer insight and support for parents of children with special needs. Resources will be shared as well as stories with a sense of emotion, warmth and humor.    For more information, contact Lorraine at 203-563-9360 or 203-856-6191.

Connecticut Down Syndrome Congress (CDSC) (Statewide)

CT Down Syndrome Congress is a special interest group that advocates for persons with Down Syndrome and their families. The group is comprised of over 350 parents, numerous professionals and over 20 advocacy groups statewide. They provide support to members through their annual convention, by co-sponsoring conferences for parents and professionals andby  hosting numerous local and state-wide activities (e.g. picnics, playgroups, mom’s night outs, holiday parties, etc.). For more information call 888-486-8537 or visit their website at www.ctdownsyndrome.org.

Connecticut Family Support Network (Statewide)

The Connecticut Family Support Network holds monthly meetings in various areas.    For more information, please contact the following:

Executive Director: Tesha Imperati  203-710-3041  timperati@ctfsn.org

North Region: Amy McCoy  860-430-9370  amccoy@ctfsn.org

Southeast Region: April Dipollina 860-271-4371 adipollina@lmhosp.org

North Central Region: Pam Scott-Ashe 860-548-9959 pscottashe@afcamp.org

Northeast Region: Heather Graveline 860-546-9289 hgraveline@ctfsn.org

South Central Region: Deborah Pagano-Finkle 203-430-0242  dpagano@ctfsn.org

West Region: Trish Butler 203-826-9739  tbutler@ctfsn.org

Southwest Region: Trish Butler 203-826-9739  tbutler@ctfsn.org

Bi-Lingual Family Support: Maggy Morales 860-679-1527  mmorales@ctfsn.org

Deaf and HH Advocacy Coordinator: Patti Silva 860-529-7766  psilva@ctfsn.org

Connecticut Grandparent Caregiver Support Group Listing

The Department of Social Services Aging Services Division offers a comprehensive listing of support groups for grandparent caregivers in Connecticut.  View the listing on their website to find contact information for each support group: Grandparent Caregiver Support Group Listing

Epilepsy Support Group (Stamford- Region 2)

The Epilepsy Foundation of CT invites parents and adults with epilepsy, to join them on the second Thursday of the month from 7 p.m. to 8:30 p.m. on the second floor at the Stamford Government Center located at 888 Washington Boulevard in Stamford, Connecticut.  For more information please contact Allison at the Epilepsy Foundation of CT at 860-346-1924 or efct@sbcglobal.net.

Ferguson Library (Stamford – Region 2)

The Ferguson Library in Stamford has a Special Needs Center with a collection of books, videos and magazines for parents of children with special needs. This public library has also been awarded an LSTA grant to expand services to children with disabilities. Please visit their webpage to see what resources they offer at www.fergusonlibrary.org, Click on the Kids link, then on Special Needs Center.

Food Allergy Support Team (FAST) (Statewide)

The mission of the Food Allergy Support Team (FAST) is to build a strong, collaborative support team for parents of children who live with food allergies.  FAST meets monthly for mutual support and practical advice, occasionally hosts guest speakers, advocates for children and educates the local community.  For more information about meetings, please contact FAST by phone at 860-265-3122, by email admin@justbreathect.com or online at www.justbreathect.com.

Friends of Autistic People (Greenwich – Region 2)

Friends of Autistic People (FAP) is a parent support group dedicated to raising awareness of services and supported living arrangements needed for autistic adults and searching for help within public, private and state organizations. FAP
sponsors workshops, a new monthly mom’s networking pizza group, lectures by experts in the field and recently produced a video on FAP’s dream Farm Living and Learning Academy. Participation is encouraged by families of children of all ages, professionals within the field and other supporters of the cause are invited to join as well. For more information, please call 203-661-8510, email fap.autismct@gmail.com or visit www.autisticadults.net.

National Spinal Cord Injury Association, CT Chapter (Statewide)

The National Spinal Cord Injury Association provides a variety of support groups to people suffering from spinal cord injuries throughout the state of Connecticut. Their support groups allow individuals the opportunity to discuss a variety of topics with other people who also have a spinal cord injury. Support group meetings are held at many area hospitals and independent living centers throughout the state. Support groups are organized and run by NSCIA CT Chapter member volunteers.  For support group locations, dates and times please visit www.sciact.org/support_grp.asp.

Pizza Moms (Darien – Region 2)

Pizza Moms is a group of moms of children with special needs in the Fairfield County area. Meetings are held at 7:30 p.m. on the first Tuesday of every month at the Post Corner Pizza Restaurant in Darien (across from the firehouse). The meetings are informal. For more info email Nanette at nanette618@gmail.com.

SPED*NET New Canaan (New Canaan – Region 2)

Special Education Network of New Canaan, Ltd. (SPED*NET New Canaan) is organized exclusively to educate the public on special education and disability-related issues.  They strive to empower parents, professionals, and students to become more effective advocates in their schools and communities, particularly in New Canaan, Connecticut, and its neighboring towns.  They serve as a resource for disability-related information, and as a parent-to-parent support and advocacy network for families of children with individual education programs (IEPs) and Section 504 Plans.    Visit www.spednet.org to learn about parent resources available in Southwestern Connecticut.

SPED*NET Wilton (Wilton – Region 2)

SPED*NET, Special Education Network of Wilton, Ltd., is a not-for-profit corporation organized exclusively to educate the public about special needs, special education and disability-related issues. SPED*NET Wilton serves as an advocacy and supportive network for Connecticut families of children with special needs, especially families of children with Individualized Education Programs (IEPs) and Section 504 Plans.  Their yearly speaker series, free and open to the public, provides information on the latest therapies, strategies and research in the educational, medical and social realms.  Their Guide to Special Services in Connecticut, Bringing Knowledge to the Table: How to be an Effective Advocate for Your Child, presents information in a user-friendly format and in easy-to-understand language, detailing the special education process and linking readers to current websites, forms and resources.  Visit www.spednetwilton.org for more information.

Stratford SEPTA (Stratford – Region 2)

Launched in 2010, the mission of Stratford SEPTA is to support, educate and inspire.  The group aims to bring together parents, families and educators to share their experiences and perspectives, provide parents with information on navigating the special education system, increase the community’s understanding of exceptional children’s abilities to reach their full potential, and enrich the lives of children and their families through education and social opportunities.   The group is open to anyone who cares about a child with any kind of individual difference that poses challenges in school and beyond.  Stratford SEPTA also has a Parent Resource Library which features books and activities available for borrowing.  View the collection at stratfordlibrary.blogspot.com. For more information, visit www.stratfordsepta.org, connect on Facebook “Stratford SEPTA” for the latest updates, or email info@stratfordsepta.org.

St. Vincent’s Developmental Services Program (Region 2)

St. Vincent’s Developmental Services provides children and teen social skills groups, sibling groups, parent support groups and parent workshops.  In addition, the Center’s multi-disciplinary team offers diagnostic testing and evaluation, clinical counseling, community resource coordination and educational support.  Insurance accepted for clinical and evaluation services: Aetna, Anthem BCBS, Cigna, Coventry First, MHN, multi-plan, Oxford, United Behavioral Health and POMCO. For a complete schedule of meetings and more information about the programs please contact Annemarie Callagy, LCSW, at 203-341-4501 or acallagy@stvincents.org, Amy Young at amy.young@stvincents.org or 203-341-4512 or visit www.stvincentsbehavioralhealth.org.

Talk About Curing Autism (TACA) Connecticut Chapter (Statewide)

TACA CT aims to support families affected by autism by hosting educational meetings on various topics, informal coffee talks and fun family outings. TACA CT provides a supportive community, as well as information on a wide range of treatments and programs so parents can help their children with autism thrive, reach their highest potential, and improve their quality of life.  The group is open to families affected by autism, ADD/ADHD, and sensory processing disorders.  For more information visit www.tacanow.org/local-chapters/northeast/connecticut.

Youth Service Bureaus (Statewide)

Youth Service Bureaus offer a network of resources and opportunities for children, youth and their families with the goal of helping youth to develop positively and to function as responsible members of their communities.  Many Youth Service Bureaus offer programs such as parent support groups, play groups, and social skills groups. To find the Youth Service Bureau  closest to you, visit the CT Youth Services Association website: www.ctyouthservices.org/Find_A_YSB.

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